Availability Of Medical Information For Registers And Registries

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5 things to know about clinical data registries | American …

https://www.ama-assn.org/practice-management/digital/5-things-know-about-clinical-data-registries

Clinical data registries record information about patients’ health status and the care they …

Registries for Evaluating Patient Outcomes - NCBI …

https://www.ncbi.nlm.nih.gov/books/NBK208643/

It is not intended to address several other types of or uses for registries (although many of the principles may be applicable), such as geographically based …

Disease Registries | NIH Library - National Institutes of …

https://www.nihlibrary.nih.gov/resources/subject-guides/health-data-resources/disease-registries

Established by Congress through the Cancer Registries Amendment Act in 1992, and administered by CDC, the National Program of Cancer Registries (NPCR) collects data …

List of Registries | National Institutes of Health (NIH)

https://www.nih.gov/health-information/nih-clinical-research-trials-you/list-registries

Clinical trials registries collect basic health information from people who agree to be contacted about participating in future clinical trials or studies. A clinical …

8 Informed Consent for Registries - NCBI Bookshelf

https://www.ncbi.nlm.nih.gov/books/NBK208622/

Thus, a covered entity may disclose PHI, without individual authorization, for a registry maintained by a public health authority (or by an entity …

US policy requires immediate release of records to patients

https://www.bmj.com/content/372/bmj.n426

On 5 April a new federal rule will require US healthcare providers to give patients access to all the health information in their electronic medical records without …

Advantages and Disadvantages of Registries: Population …

https://www.ahrq.gov/evidencenow/tools/registries-pros-cons.html

Resource: Advantages and Disadvantages of Registries (PDF, 173 KB, 1 page) Registries can complement paper records or electronic health records (EHRs), which frequently do …

Use of patient registries during public health emergencies

https://www.ama-assn.org/delivering-care/ethics/use-patient-registries-during-public-health-emergencies

The AMA Code of Medical Ethics sets out the bedrock obligation to protect the confidentiality of information “gathered in association with the care of the patient” in …

Electronic Health Records | CMS

https://www.cms.gov/Medicare/E-Health/EHealthRecords

An Electronic Health Record (EHR) is an electronic version of a patients medical history, that is maintained by the provider over time, and may include all of the …