Bullosa Medical Research

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Epidermolysis bullosa - Symptoms and causes - Mayo …

https://www.mayoclinic.org/diseases-conditions/epidermolysis-bullosa/symptoms-causes/syc-20361062

Epidermolysis bullosa (ep-ih-dur-MOL-uh-sis buhl-LOE-sah) is a rare condition that causes fragile, blistering skin. The blisters may appear in response to minor injury, even from heat, rubbing or scratching. In severe cases, the blisters may occur inside the body, such as the lining of the mouth or stomach. … See more

Gene-therapy gel shows promise for blistering skin …

https://med.stanford.edu/news/all-news/2022/03/gene-therapy-epidermolysis-bullosa.html

A gene therapy gel applied to the wounds of nine people — three of whom were children — with the blistering skin disease epidermolysis bullosa helped the …

EBMRF

https://www.ebmrf.org/

WHAT IS EPIDERMOLYSIS BULLOSA? EB is a group of genetic disorders characterized by blister formation after minor trauma to the skin. This family of disorders range in …

Home | debra of America

https://www.debra.org/

Launched in July 2020, EBconnect.org is a private, online platform for those living with and working in Epidermolysis Bullosa (EB). Members can explore an interactive map and connect with others in their region and …

Stanford EB Research Updates | Dermatology | Stanford …

https://med.stanford.edu/dermatology/research/research.html

Epidermolysis bullosa (EB) is a rare, inherited (genetic), blistering skin disease that affects both sexes and all ethnic and racial groups. EB interferes with the proteins that connect …

About EBMRF — EBMRF

https://www.ebmrf.org/about-ebmrf/

The Epidermolysis Bullosa Medical Research Foundation was established in 1991 by Gary & Lynn Fechser Anderson at the request of Dr. Eugene Bauer, then Professor and …

Genetically Modified Skin Grafts Show Promise for Treating ...

https://archive.niams.nih.gov/newsroom/spotlight-on-research/genetically-modified-skin-grafts-show-promise-treating-epidermolysis

Researchers have shown early success creating genetically modified skin tissue to graft onto patients with a severe form of epidermolysis bullosa (EB). Stanford …

Junctional epidermolysis bullosa - About the Disease

https://rarediseases.info.nih.gov/diseases/2152/junctional-epidermolysis-bullosa/research/

Disease at a Glance Summary Junctional epidermolysis bullosa (JEB) is a type of Epidermolysis Bullosa, a group of genetic conditions that cause the skin to be very …

Epidermolysis bullosa - About the Disease - Genetic and …

https://rarediseases.info.nih.gov/diseases/6359/epidermolysis-bullosa/

There are four main types of EB, which are classified based on the depth, or level, of blister formation: Epidermolysis bullosa simplex Dystrophic Epidermolysis bullosa …

Parents' Race to Fund Cure for Teen Son's Painful Skin …

https://people.com/human-interest/parents-fund-cure-teen-sons-painful-skin-disease-time/

A biopsy confirmed the doctor’s suspicions — Brandon had Epidermolysis bullosa (EB), a rare and incurable genetic condition that causes painful blisters on the …

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