Havasupai Medical Research

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Genetic Research among the Havasupai: A Cautionary Tale

https://journalofethics.ama-assn.org/article/genetic-research-among-havasupai-cautionary-tale/2011-02

In 1989, members of the small tribe of approximately 650 poverty-stricken people approached ASU anthropology professor John Martin, with whom the tribe had a preexisting and trusting relationship , seeking to learn why the incidence of diabetes within their community was increasing. Genetic links to diabetes … See more

The Havasupai Indian Tribe Case — …

https://www.nejm.org/doi/full/10.1056/NEJMp1005203

The Havasupai Indian Tribe Case — Lessons for Research Involving Stored Biologic Samples. Michelle M. Mello, …

Havasupai Genetic Research Case Settled

https://www.upstate.edu/bioinbrief/articles/2011/2011-03-the-havasupai-case.php

Havasupai Genetic Research Case Settled. After seven years of legal arguments, Arizona State University reached a settlement agreement with the Havasupai Indian tribe last year. …

Is the Havasupai Indian Case a Fairy …

https://dnascience.plos.org/2013/08/15/is-the-havasupai-indian-case-a-fairy-tale/

– In May 1990, when the Havasupai Tribal Chair confirmed that the diabetes project could proceed, Markow had …

'Blood Victory' In Medical Research Dispute : NPR

https://www.npr.org/2014/04/25/306832661/blood-victory-in-medical-research-dispute

The Havasupai Native American tribe celebrated Blood Victory Day this week. That's the anniversary of their legal victory over researchers who misused …

Genetic research among the Havasupai--a cautionary tale

https://pubmed.ncbi.nlm.nih.gov/23121851/

Genetic research among the Havasupai--a cautionary tale. Genetic research among the Havasupai--a cautionary tale Virtual Mentor. 2011 Feb 1;13(2):113-7. doi: …

Why the Navajo Nation Banned Genetic …

https://www.history.com/news/why-the-navajo-nation-banned-genetic-research

Though the researcher who used the Havasupai Tribe’s DNA for other purposes maintained she had received informed consent, the Havasupai Tribe sued. Eventually, it received a …

Indian Tribe Wins Fight to Limit Research of Its DNA

https://www.nytimes.com/2010/04/22/us/22dna.html

Jim Wilson/The New York Times. The Havasupai settlement appears to be the first payment to individuals who said their DNA was misused, several legal experts said, and came after the …

HeLa, the Havasupai, and Informed …

https://dnascience.plos.org/2013/08/08/hela-the-havasupai-and-informed-consent/

The Havasupai have lived in a small village called Supai at the bottom of the southwest corner of the Grand Canyon since splitting from other descendants of the prehistoric Hohokam Indians …

Who Owns Your Body | The Havasupai …

http://www.whoownsyourbody.org/havasupai.html

The tribe asserts that research on schizophrenia and inbreeding sitgmatizes them and that they would not have authorized any migration research because it conflicts with their religious origin …

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