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List of Registries | National Institutes of Health (NIH)

    https://www.nih.gov/health-information/nih-clinical-research-trials-you/list-registries
    A registry is a collection of information about individuals, usually focused around a specific diagnosis or condition. Many registries collect information about people who have a specific disease or condition, while others seek participants of varying health …

5 things to know about clinical data registries | American …

    https://www.ama-assn.org/practice-management/digital/5-things-know-about-clinical-data-registries
    Clinical data registries record information about patients’ health status and the care they …

Disease Registries | NIH Library - National Institutes of …

    https://www.nihlibrary.nih.gov/resources/subject-guides/health-data-resources/disease-registries
    Established by Congress through the Cancer Registries Amendment Act in 1992, and administered by CDC, the National Program of Cancer Registries (NPCR) collects data …

Registries for Evaluating Patient Outcomes - NCBI …

    https://www.ncbi.nlm.nih.gov/books/NBK208643/
    The purpose of this document is to serve as a guide for the design and use of patient registries for scientific, clinical, and health policy purposes. Properly designed …

Defining Patient Registries and Research …

    https://www.ncbi.nlm.nih.gov/books/NBK164514/
    Patient registries have been defined as “an organized system that uses observational study methods to collect uniform data (clinical …

What are clinical registries? - Public Health and …

    https://www.monash.edu/medicine/sphpm/registries/what-are-clinical-registries
    Clinical registries are databases that systematically collect health-related information within an overall governance and management structure on individuals who are: treated with a …

Patient registries | European Medicines Agency

    https://www.ema.europa.eu/en/human-regulatory/post-authorisation/patient-registries
    Patient registries are organised systems that use observational methods to collect uniform data on a population defined by a particular disease, condition or exposure, and that is …

What Is a Clinical Data Registry and Why Is it …

    https://www.arbormetrix.com/blog/clinical-data-registry-basics/
    A clinical data registry is an interactive database that collects, organizes, and displays healthcare information. Clinical data registries are also sometimes called patient registries and disease …

How Cancer Registries Work | CDC

    https://www.cdc.gov/cancer/npcr/value/registries.htm
    At the hospital’s cancer registry, a specially trained person called a cancer registrar enters information about the cancer and treatment from Jennifer’s medical record into a computer. The hospital …

Registries | definition of registries by Medical dictionary

    https://medical-dictionary.thefreedictionary.com/registries
    registry. [ rej´is-tre] 1. an office where a nurse's name may be listed as being available for duty. 2. a central agency for collection of pathologic material and related data in a …



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