Navigating The Care Of The Medically Fragile Child Conference

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Recognition and Management of Medical Complexity

https://publications.aap.org/pediatrics/article/138/6/e20163021/52649/Recognition-and-Management-of-Medical-Complexity

Families often need the assistance of the medical home while they navigate the Individualized Education Program or 504 plans at school. 83 The medical home …

Supporting Medically Fragile Children and Their Families

https://www.naeyc.org/resources/pubs/yc/sep2017/supporting-medically-fragile-children

With a medically fragile child, continuous coordination among educators, medical staff, and families is essential. Ideally, hospitals or early childhood programs would have on staff—or have access …

Improving Care of the Medically Fragile Child - US News & World …

https://www.usnews.com/news/healthcare-of-tomorrow/articles/2017-09-29/improving-care-of-the-medically-fragile-child

It has grown from a handful of parent volunteers with medically fragile kids to seven full-time staffers who connect families with such community resources as …

Analysis: As a Parent of a Medically Fragile Child, How I’ve …

https://www.calhealthreport.org/2021/05/12/analysis-as-a-parent-of-a-medically-fragile-child-how-ive-learned-to-stay-calm-in-a-crisis/

Parents of children with fragile, medically complex disabilities are expected to provide the same level of care that intensive care units provide, but they’re expected to …

How a Nursing Shortage Affects Families With Disabled Children

https://www.nytimes.com/2021/06/04/health/nursing-shortage-disabled-children.html

A nurse caring for a medically fragile child at home has the same responsibilities he or she would in a hospital but no medical backup in case of …

Raising and speaking out for medically fragile kids

https://www.northcarolinahealthnews.org/2019/09/26/raising-and-speaking-out-for-medically-fragile-kids/

Whenever a health care policy event happens around North Carolina, Staggs or another parent of a medically fragile child is often there. Just this summer, Staggs spoke at Rep. Alma Adams’s “Healthcare for …

Improving transitions in care for children with complex and …

https://pubmed.ncbi.nlm.nih.gov/32410674/

Conclusions: This project identified policy and practice gaps that currently exist related to transitions in care for children with complex and medically fragile needs …

Navigating The Care Of The Medically Fragile Child

https://dayofdifference.org.au/n-medical/navigating-the-care-of-the-medically-fragile-child.html

This complicated nature of in-home care combined with the financial burdens of caring for a medically fragile child can be stressful for the family unit. Commitment, …

Navigating the Care of the Medically Fragile Child Conf - April 2008

https://www.facebook.com/groups/722052394526116/

This is an online meeting place for the AT community and those who attended the RJ Cooper Road Trip at Navigating the Care of the Medically Fragile Child conference, …

Navigating Care Medically Fragile Child | Day of Difference

https://dayofdifference.org.au/n-medical/navigating-care-medically-fragile-child.html

Connecting with families of medically fragile children means conducting an unusually comprehensive initial home visit and writing a detailed care plan—as Monique and Julia …

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