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Time for a Patient-Driven Health Information Economy?

    https://www.nejm.org/doi/full/10.1056/NEJMp1512142
    Steps toward Creating a Patient-Driven Information Economy. 1. Both the Centers for Medicare and Medicaid Services and private insurers can offer strong incentives for health care organizations to ...

The Value of Patient-Driven Research and Ways to …

    https://academyhealth.org/blog/2022-02/value-patient-driven-research-and-ways-sustain-it
    The health care research landscape is changing. Patient-driven research, led by patients and stakeholders with lived experience, is shifting the paradigm for how …

Patient Driven-Data: The Key to Improving the Health Ecosystem

    https://www.clinicalresearchnewsonline.com/news/2021/04/13/patient-driven-data-the-key-to-improving-the-health-ecosystem
    The better data we have, the better we can tackle health challenges. At a development level, PHRs can be used by pharma companies and manufacturers which …

Patient-Driven Research Will Lead To Better Health

    https://www.healthaffairs.org/do/10.1377/forefront.20160519.054923
    John M. Westfall and his colleagues share a process by which community members have translated more than 25 evidence-based medical guidelines into locally …

Fully Engaged: The Importance of Involving …

    https://heal.nih.gov/news/stories/importance-of-patient-engagement
    “The secret of the care of the patient is caring for the patient.” So wrote Francis Peabody, M.D. in the …

Patient-Driven Research: Rich Opportunities and Real …

    https://www.medscape.com/viewarticle/713872
    The communication, data-collecting, and aggregating possibilities offered by Internet-based communities, coupled with patients' realization that the medical …

Patient-Driven Research: Rich Opportunities and Real …

    https://participatorymedicine.org/journal/evidence/reviews/2009/10/21/patient-driven-research-rich-opportunities-and-real-risks/
    Since the Internet’s earliest days, patients have used online resources to share experiences, learn about diseases and treatments, and become advocates. A …

The perils and pitfalls of “patient-driven” clinical research

    https://sciencebasedmedicine.org/the-perils-of-patient-driven-clinical-research/
    Dr. Gorski's full information can be found here, along with information for patients. David H. Gorski, MD, PhD, FACS is a surgical oncologist at the Barbara Ann …

Patients as partners in research – The challenges for …

    https://researchoutreach.org/articles/patients-partners-research-challenges-researchers-patient-involvement/
    Patients are the benefactors of medical research. Yet, in the past, patients were regarded solely as passive objects in research-based development of new …

Patient-driven research | DontBePatient Intelligence GmbH

    https://www.dontbepatient.com/
    Patient intelligence. DBPi is your partner for innovative, global data sourcing and smart data interpretation. Our digital toolbox allows us to generate and connect high-quality data …



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