Rare Medical Condition Stories

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Personal Stories About Rare Diseases | FDA

https://www.fda.gov/industry/medical-products-rare-diseases-and-conditions/personal-stories-about-rare-diseases

These stories are critical to inform medical product development and regulation. FDA experts also discuss their work on rare diseases and the widespread efforts across the …

Nobody Has My Condition But Me | The New Yorker

https://www.newyorker.com/magazine/2023/01/30/nobody-has-my-condition-but-me

A specialist in rare inflammatory and immune disorders, Ombrello was concerned by what first-round genetic tests showed: a disabling mutation in a gene, …

Rare Resilience: Tracey’s Story in Honor of Rare …

https://rarediseases.org/rare-resilience-traceys-story-in-honor-of-rare-disease-day/

My brain injury and the rare medical problems I developed as a result of the injuries to my brain, pituitary gland, cerebellum, autonomic nervous system, and …

27 oddest medical case reports | Weird medical cases

https://www.livescience.com/37919-oddest-medical-case-reports.html

Introduction. Have you ever been to the doctor because you had a fish jaw …

Top 5 strangest medical conditions - Medical News Today

https://www.medicalnewstoday.com/articles/323395

I always look drunk — my rare medical condition …

https://nypost.com/2023/02/15/i-always-look-drunk-my-rare-medical-condition-destroyed-me/

A British woman’s unusual medical condition has destroyed her life and makes everyone think she’s intoxicated — and doctors believe her malady was brought …

30 Strange And Rare Medical Cases That Show What Medical

https://www.demilked.com/interesting-medical-cases/

“After needing 13 liters of blood for a surgery at the age of 13, a man named James Harrison pledged to donate blood once he turned 18. It was discovered that his blood contained a …

10 People With Shocking and Extreme Deformities

https://listverse.com/2013/03/26/10-people-with-shocking-and-extreme-deformities/

Rudy Santos, a 69 year old from the Philippines, suffers from the ultra rare condition known as Craniopagus parasiticus or parasitic twin. He is the oldest person …

10 Rarest Medical Conditions of All Time

https://hosbeg.com/10-rarest-medical-conditions-time/

10 Rarest Medical Conditions of All Time Kuru AKA Laughing Death. Kuru is a disease of the nervous system that only affected the South Fore people of New Guinea. …

10 of the Strangest Medical Conditions

https://www.wonderslist.com/10-strangest-medical-conditions/

6. Fields Disease. This is one of the rarest conditions in the whole world. Only two people are known to have suffered from it. The disease is named after Catherine and Kirstie …

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