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Registry Research and Medical Privacy | NEJM
- https://www.nejm.org/doi/full/10.1056/NEJMe048027
- Researchers often make an assessment of where things stand for a given medical condition through disease registries that attempt to include everyone who has …
Principles of Registry Ethics, Data …
- https://www.ncbi.nlm.nih.gov/books/NBK208620/
- Applying the principle of respect for persons to the research use of health information generates additional ethical …
List of Registries | National Institutes of Health (NIH)
- https://www.nih.gov/health-information/nih-clinical-research-trials-you/list-registries
- A registry is a collection of information about individuals, usually focused around a specific diagnosis or condition. Many registries collect information about …
Principles of Registry Ethics, Data …
- https://www.ncbi.nlm.nih.gov/books/NBK562583/
- In general, the Privacy Rule permits a covered entity (or business associate on its behalf) to use or disclose patient …
Research | HHS.gov
- https://www.hhs.gov/hipaa/for-professionals/special-topics/research/index.html
- The Privacy Rule allows covered entities to rely on such express legal permission, informed consent, or waiver of authorization of informed consent, which they create or receive …
Research Repositories, Databases, and the HIPAA …
- https://privacyruleandresearch.nih.gov/pdf/research_repositories_final.pdf
- Researchers in medical and health-related disciplines require access to many sources of health information, from archived medical recordsand epidemiological databases to …
HIPAA Privacy Rule and Its Impacts on Research
- https://privacyruleandresearch.nih.gov/clin_research.asp
- Where a covered entity conducts clinical research involving protected health information (PHI), physician-investigators need to understand the Privacy Rule's …
Registry research and medical privacy - PubMed
- https://pubmed.ncbi.nlm.nih.gov/15070797/
- Registry research and medical privacy N Engl J Med. 2004 Apr 1;350 (14):1452-3. doi: 10.1056/NEJMe048027. Authors Julie R Ingelfinger , Jeffrey M Drazen …
Registry research and medical privacy. | Semantic Scholar
- https://www.semanticscholar.org/paper/Registry-research-and-medical-privacy.-Ingelfinger-Drazen/be9fb5623ee6f0f84c85ad58f1378a4e8995f0de
- An assessment of where things stand for a given medical condition through disease diagnosis and treatment in the 21st century is often made through a review of existing …
Registry Research and Medical Privacy | Request PDF
- https://www.researchgate.net/publication/8630568_Registry_Research_and_Medical_Privacy
- Request PDF | Registry Research and Medical Privacy | Medical progress is possible largely because we learn from our successes and our failures. Researchers …
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