Scleroderma Medical Advocacy

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National Scleroderma Foundation

https://scleroderma.org/

National Scleroderma Foundation Our Mission The National Scleroderma Foundation was founded in 1998 to advance medical research, promote disease awareness, and provide support and education to people with scleroderma. 25th …

Scleroderma - Symptoms and causes - Mayo Clinic

https://www.mayoclinic.org/diseases-conditions/scleroderma/symptoms-causes/syc-20351952

Our Priorities - National Scleroderma Foundation

https://scleroderma.org/our-priorities/

Scleroderma has been included as a condition eligible for study in the past, leading to PRMRP funding for nearly $10 million in meritorious and meaningful scleroderma …

Diagnoses & Tests - National Scleroderma Foundation

https://scleroderma.org/diagnoses-tests/

Three scleroderma autoantibodies are the most common. They are also seen most often in certain subsets of scleroderma, so they tell us more about your possible prognosis: Anti …

Advocacy and Awareness - National Scleroderma Foundation

https://scleroderma.org/tri-state-chapter/advocacy-and-awareness/

Advocacy Advocating for changes in public policy contributes to the relentless force in finding a cure and improving the lives of people affected by scleroderma. Each …

Life as a Raynaud's, Scleroderma, Rare Disease Patient Advocate

https://sclerodermanews.com/columns/raynauds-scleroderma-rare-disease-patient-advocate/

Life as a Raynaud’s, Scleroderma, Rare Disease Patient Advocate. Living with a rare disease brings many challenges, along with becoming an expert on your own …

Advocacy Action Home - Scleroderma Foundation

https://national.scleroderma.org/site/SPageServer/?pagename=action_home2

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Scleroderma Advocacy Can Take a Physical and Emotional Toll

https://sclerodermanews.com/columns/scleroderma-patient-advocacy-can-take-physical-emotional-toll/

Scleroderma Advocacy Can Take a Physical and Emotional Toll by Amy Gietzen July 20, 2022 Lately, my life has been at a standstill. For the past 15 years, I’ve …

Advocate Resources - National Scleroderma Foundation

https://national.scleroderma.org/site/SPageServer/?pagename=Action_AdvocateResources

Sit in on a mock meeting that's just like the ones patient advocates have in the offices of Congress members. This small group of advocates will likely include a …

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