Should Medical Genetic Information Be Protected

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Privacy in Genomics - Genome.gov

https://www.genome.gov/about-genomics/policy-issues/Privacy

In addition to companies that sequence individuals’ DNA directly, more companies now offer their own analysis or digital health services to consumers who upload their genetic information. DTC genetic tests have limited regulation, and the growth of the …

Your Genetic Data Isn't Safe - Consumer Reports

https://www.consumerreports.org/health-privacy/your-genetic-data-isnt-safe-direct-to-consumer-genetic-testing-a1009742549/

One is that your genetic information could be used in underwriting insurance policies. It can’t be used for health insurance, thanks to the ACA, but—except in Florida …

Genetic Information Discrimination | U.S. Equal …

https://www.eeoc.gov/genetic-information-discrimination

Genetic information also includes an individual's request for, or receipt of, genetic services, or the participation in clinical research that includes genetic services by the …

Can We—and Should We—Ensure …

https://www.ncbi.nlm.nih.gov/books/NBK45152/

At first glance, it might seem possible to guarantee privacy for only that information which comes directly from testing a person's DNA and …

Fact Sheet: Genetic Information Nondiscrimination Act

https://www.eeoc.gov/laws/guidance/fact-sheet-genetic-information-nondiscrimination-act

Understanding Ownership and Privacy of …

https://sitn.hms.harvard.edu/flash/2018/understanding-ownership-privacy-genetic-data/

The breadth of genetic data becomes important when we consider that most genetic variants do not actually cause disease. So, if someone with Alzheimer’s, for example, had their DNA tested, …

Genetic Information | HHS.gov

https://www.hhs.gov/hipaa/for-professionals/special-topics/genetic-information/index.html

In the proposed rule issued on October 1, 2009 OCR proposes to modify the Privacy Rule to clarify that genetic information is health information and to prohibit the …

Genetic Information Privacy | Electronic …

https://www.eff.org/issues/genetic-information-privacy

Genetic data might be used to develop cures for cancer, paranoid schizophrenia, common tooth decay, and far more—multifarious areas of research that can seem irresistibly compelling. So what can …

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