Vhl Medical Studies

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Von Hippel-Lindau Disease (VHL) | National Institute of …

https://www.ninds.nih.gov/health-information/disorders/von-hippel-lindau-disease-vhl

The National Institute of Neurological Disorders and Stroke (NINDS) pursues a vigorous program of research aimed at preventing and treating disorders that cause …

FDA approves belzutifan for cancers associated with von …

https://www.fda.gov/drugs/resources-information-approved-drugs/fda-approves-belzutifan-cancers-associated-von-hippel-lindau-disease

On August 13, 2021, the Food and Drug Administration approved belzutifan (Welireg, Merck), a hypoxia-inducible factor inhibitor for adult patients with von Hippel …

Von Hippel-Lindau Syndrome

https://www.ncbi.nlm.nih.gov/books/NBK1463/

Clinical Description. Von Hippel-Lindau (VHL) syndrome is characterized by hemangioblastomas of the brain, spinal cord, and retina; renal cysts and renal cell …

Belzutifan Approved for Tumors Linked to VHL - NCI

https://www.cancer.gov/news-events/cancer-currents-blog/2021/fda-belzutifan-vhl-tumors

People with the rare inherited disorder von Hippel-Lindau disease (VHL) have an increased risk of developing cancerous and noncancerous tumors in multiple …

Von Hippel-Lindau Disease (VHL) - Cleveland Clinic

https://my.clevelandclinic.org/health/articles/6118-von-hippel-lindau-disease-vhl

Von Hippel-Lindau (VHL) disease is a genetic (inherited) condition. Starting in early adulthood, people with VHL may develop tumors in their brain, spinal cord, eyes, kidneys, …

Learn More About Von Hippel-Lindau Trials - VHL Alliance

https://www.vhl.org/research/trials/

Now more than ever before, VHL is being researched all over the world. Often this research includes clinical trials that patients are invited to participate in if they meet the specific …

Von Hippel-Lindau Syndrome | Cancer.Net

https://www.cancer.net/cancer-types/von-hippel-lindau-syndrome

As VHL manifestations can vary, recommendations for a person's medical surveillance will change over their lifetime. These recommendations are expected to change over time as …

von Hippel-Lindau Disease Treatment - MD Anderson …

https://www.mdanderson.org/cancer-types/von-hippel-lindau-disease/von-hippel-lindau-disease-treatment.html

von Hippel-Lindau Disease Treatment Because von Hippel-Lindau disease (VHL) can cause several different problems, MD Anderson brings together a team of experts from several …

Von Hippel-Lindau (VHL) | Johns Hopkins …

https://www.hopkinsmedicine.org/health/conditions-and-diseases/von-hippellindau-vhl

Von Hippel-Lindau (VHL) syndrome is a rare disorder caused by a mutation in a single gene called the VHL gene. If you have VHL syndrome, you are at greater risk of developing …

Von Hippel-Lindau disease - About the Disease

https://rarediseases.info.nih.gov/diseases/7855/von-hippel-lindau-disease/

What Are Clinical Studies? Clinical studies are medical research involving people as participants. There are two main types of clinical studies: Clinical trials determine if a …

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